Findata led the Task for creating the forms for applying for electronic health data for secondary use: a data access application and a data request. The aim was to make user-friendly forms that would align with the EHDS Regulation proposal and GDPR requirements, accommodating variations across nodes. These forms are designed to provide health data access bodies with the necessary information about planned data use to assess applicants’ eligibility for data access permits.

Drawing from Findata’s experience and input from partners, these forms underwent meticulous refinement through workshops and feedback rounds. The process involved formulating questions, structuring formats, and ensuring dynamic adjustments based on applicant responses.

A detailed report accompanies the forms, offering insights into methodology and recommendations for further development.

Find out more here

The new EHDS2 Pilot leaflet is available here.

CALL FOR PARTICIPATION: The External Advisory Board will provide additional insight and expertise to the project activities, which covers the entire user journey for the European Health Data Space (EHDS), including data discovery (metadata standards), data access (regulatory and legal compliance), and data preparation and use (data interoperability and quality).

By participating in the HealthData@EU Pilot External Advisory Board, you will contribute in shaping the future European Health Data Space for secondary use and in ensuring that it is fit for purpose for all categories of stakeholders.Deadline for submission of applications: 13 January 2023. Read the full call here.

On 1 February the abstract submission will open for the 16^th European Public Health Conference, taking place 8-11 November 2023 in Dublin, Ireland.

The 16^th European Public Health conference is a great opportunity to present the progress made in the first year of the HealthData@EU Pilot.

Workshop proposals are considered for 60-minutes sessions. And abstract submission closes 1 May.

More information about the abstract submission is available here.

March 21, 2023

In March 2023, the HealthData@EU Pilot project entered a crucial phase: the proof of concept (POC) phase. We are pleased to share with you the new HealthData@EU Pilot report which provides a first high-level vision of the target architecture of the POC and details the key steps to deliver the minimum viable product (MVP) by the end of 2023.

=> Download Proof of concept communication here